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Title Support Group Description
Camp Winning Hands - Aug 7-10,2016 - Livermore, N. CA

Camp Winning Hands is an overnight camping experience for children with congenital hand and upper limb differences, and provides an opportunity for play and exploring in a safe environment. Activities are organized by the pediatric hand teams at UCSF Benioff Children's Hospital Oakland and Shriners Hospitals for Children—Northern California. The Taylor Family Foundation hosts the camp in Livermore, Calif.

In 2016, Camp Winning Hands will take place August 7 – 10 and is free of charge to attendees.

To learn more about Camp Winning Hands email: campwinninghands@gmail.com

http://www.childrenshospitaloakland.org/main/departments-services/camp-winning-hands-161.aspx

Center for Limb Differences in Michigan

The Mary Free Bed Rehabilitation Hospital’s is located in Grand Rapids, Michigan. Their program, the Center for Limb Differences, specializes in helping and educating people about limb differences, specifically in children.

Please use this link to connect with the Center for Limb Differences page:  http://www.maryfreebed.com/Rehab-Services/Amputee-Program/Amputee-Rehabilitation-at-Mary-Free-Bed/Center-for-Limb-Differences-(1)

Hand Surgeon's Blog - get questions answered here

If there is every a question I can answer for a family, I am happy to help!  My name is Charles Goldfarb -  an orthopaedic hand surgeon with a subspecialty of congenital anomalies. I work at the St Louis Shriners Hospital and the St Louis Childrens Hospital. Helping Hands Foundation website is a great reference for my patients - www.HelpingHandsGroup.org

I have a blog that I have been working on with approximately a 1x/ week post with information about congenital anomalies. It remains a work in progress. These posts might be interesting to HHF followers. http://congenitalhand.wustl.edu/.  I am here to help answer any questions about upper limb loss and medical options.

Charles A. Goldfarb, MD
Hand and Upper Extremity Surgery
Associate Professor of Orthopaedic Surgery
Washington University School of Medicine

 

Hands To Love in FL - Support and Weekend Camp in March

One weekend a year, Hands to Love families from all across the country gather at Camp Crystal Lake in Starke, FL for a weekend of adventure, camaraderie and relaxation. Hand Camp provides children a safe haven in which to try new activities, meet others who have similar upper limb differences, and just have fun being kids. Hand Camp also allows parents to network with each other, share ideas and experiences, ask questions, be pampered, and relax.

The next Hand Camp will be March 16-18, 2012. http://www.handstolove.org/registration_fam.html

Helping Hands West

Networking, peer support, and events in Northern California for families with upper limb deficient children. NOTE: This group has not been active for several years.

Little Fins (littlefins.org) - local group of Minnesotan families

Welcome to the Little Fins Limb Difference Group Web site. We are a local group of Minnesotan families located throughout in the Twin Cities area who are all sharing in the experience of having a family member with a upper extremity limb difference. Our purpose is simple: to provide support, encouragement and camaraderie to one another. http://www.littlefins.org/

LuckyFinProject.org - Michigan Support Group - check it out

A child being born with a limb difference is not tragic. It's extremely important to show our children how capable & wonderfully made they are. If we treat them as flawed or limited that is who they will believe themselves to be and that would be the tragedy. Visit:  http://luckyfinproject.org

 

The mission of the Lucky Fin Project is to educate, celebrate, support and unite.  Lucky Fins ROCK!

Nub Club of Central Ohio - Family Fun

Any Worthingtonites see some familiar faces in their mailbox today? :) Be sure and read the article about Little Alouette just after the one about us, because I wrote it - my first published article! :)Patti Simmons decided to create a blog (www.TateCanToo.com) about her 5-year-son, Tate. Every day, she posts a picture of him doing age-appropirate 'normal' things - just like his pals. Now, every time he starts a new school, she says, "This is a good way to put something out there that he could show other kids or I can send to parents. That way we don't have to do quite as much educating." (excerpt from an article in The Worthington Post...read more at: http://emagazines.hibu.com/Worthington). What a great idea and lots of fun!

The Simmons family also formed THE NUB CLUB OF CENTERAL OHIO (https://www.facebook.com/thenubclub). Join their Facebook page and come meet other families in the Ohio area!

Single-Handed Blog - by Debi Latour from Shriners Hospital

Debra A. Latour, M Ed, OTR/L, has worked at Shriners Hospitals for Children in Springfield, Mass for 13 years. Before she was employed by the hospital, she was a patient. Her parents sought treatment at Shriners when she was a toddler for an upper limb deficiency.  Check out her blog: http://SingleHandedSolutions.blogspot.com

Her blog is dedicated to questions and answsers - and even the occasional anecdotal story! - about life with an upper limb difference: http://SingleHandedSolutions.blogspot.com.

Special Blessings in AZ - support for amputees of all ages

Special Blessings Support Group in Arizona was founded by Adriane Grimaldi to help families of children with a limb difference as well as provide resources for adult amputees.

They can be found at http://www.vagrimaldi.com/sb/index.htm or via email at sbaz@cox.net

 

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